The Position
This morning I awoke in what I have come to call, ‘The Position’. I was on my left side, my neck and head ‘curled’ back towards my heels, my hands curled shut, my arms curled tight against my chest; a semi Tetany if you will. It occurs when your blood calcium level falls too low. Once you have experienced Tetany, your body ‘learns’ this muscular reaction, and it can and does happen when your blood calcium level comes down ‘rapidly’ (and that is a matter of your body’s choosing!), and your actual calcium levels do not have to be ‘low’, just lowered!
It has not happened often the past couple of years, due to whatever is producing parathyroid hormone in my body, but it happens...
Of course, if my calcium levels are really low, this can happen when I am wide awake! Fun stuff!
Saturday, December 15, 2007
Thursday, December 13, 2007
Stash Building!
A person I just recently met, stopped by today and dropped off white plastic BAGS & BAGS of yarn! All kinds of yarn, Red Heart, Caron, Bulky, and Specialty! "An early Christmas Present,” she said.
I have not even really gone though it all yet!
I just could not believe it! Here I have been NOT crocheting, as I was literally out of yarn! It is very difficult to make anything when you only have one or two skeins of yarn available at a time! Well I have enough yarn to keep my hook going for months now, if not longer.
In fact, I have so much yarn now (thank goodness), I am going to have to invest in a couple of storage bins! Oh joy...
I have not even really gone though it all yet!
I just could not believe it! Here I have been NOT crocheting, as I was literally out of yarn! It is very difficult to make anything when you only have one or two skeins of yarn available at a time! Well I have enough yarn to keep my hook going for months now, if not longer.
In fact, I have so much yarn now (thank goodness), I am going to have to invest in a couple of storage bins! Oh joy...
Monday, December 10, 2007
Off My Hook - Poncho
Thursday, December 06, 2007
Sjogren’s Flare
Two weeks ago, doc lowered Plaquenil dose from 200mg in AM + 100mg at bedtime (because of side effects) to just 200mg in AM.
The first week I did just fine. On about the 9th day after the dose change, it hit, hard, and fast. So here I am, very sick again!
-constant headache
-so dry at night, tongue sticks to my mouth (Had to start using a mask at night again, no humidifier. Going through a LOT of Numoisyn Lozenges!)
-joint pain – only the movable joints (wrists/ankles the worst)
-fatigue – not enough energy to do anything
-swelling of my feet (top & bottom) at toe joints
-muscle aches/sensitive skin
-sudden, VERY high Blood Glucose on same foods/insulin (and all THAT entails)
-Feeling of being very ill
-increased anxiety
-fingers white and cold at slightest provocation
-do not think I’m thinking straight
Today spoke w/doc on phone. She upped prednisone again, (took an extra dose of it as soon as I spoke to her) Increased the Plaquenil back to 300mg, but at 150mg twice a day. (It will mean cutting pills in FOURS, but they are not tiny.).
Hopefully, I’ll start feeling better again, SOON, and without the Plaquenil side effects that were causing probs. Ff the Plaquenil side effects start again, I’ll know what to look for, and contact doc immediately, also now have a med for the ‘side effects’. Titration, titration, titration!
It is also time for me to make an appointment with my Ophthalmologist, to make sure the Plaquenil (worst side effect!), is not affecting my eyes. But first there was ‘the flood’ in my apartment, then the reconstruction, the fight with AIMCO to get reimbursed, and now I am sick.
Maybe I will get that appointment made tomorrow. In fact, am behind on several doc appointments. Sigh...
But right now, tonight, am going to get ready for bed, turn the sound down on the TV, (nothing good on tonight) listen to Ham Radio (SWL) from the other room, and just sit and crochet for awhile.
The first week I did just fine. On about the 9th day after the dose change, it hit, hard, and fast. So here I am, very sick again!
-constant headache
-so dry at night, tongue sticks to my mouth (Had to start using a mask at night again, no humidifier. Going through a LOT of Numoisyn Lozenges!)
-joint pain – only the movable joints (wrists/ankles the worst)
-fatigue – not enough energy to do anything
-swelling of my feet (top & bottom) at toe joints
-muscle aches/sensitive skin
-sudden, VERY high Blood Glucose on same foods/insulin (and all THAT entails)
-Feeling of being very ill
-increased anxiety
-fingers white and cold at slightest provocation
-do not think I’m thinking straight
Today spoke w/doc on phone. She upped prednisone again, (took an extra dose of it as soon as I spoke to her) Increased the Plaquenil back to 300mg, but at 150mg twice a day. (It will mean cutting pills in FOURS, but they are not tiny.).
Hopefully, I’ll start feeling better again, SOON, and without the Plaquenil side effects that were causing probs. Ff the Plaquenil side effects start again, I’ll know what to look for, and contact doc immediately, also now have a med for the ‘side effects’. Titration, titration, titration!
It is also time for me to make an appointment with my Ophthalmologist, to make sure the Plaquenil (worst side effect!), is not affecting my eyes. But first there was ‘the flood’ in my apartment, then the reconstruction, the fight with AIMCO to get reimbursed, and now I am sick.
Maybe I will get that appointment made tomorrow. In fact, am behind on several doc appointments. Sigh...
But right now, tonight, am going to get ready for bed, turn the sound down on the TV, (nothing good on tonight) listen to Ham Radio (SWL) from the other room, and just sit and crochet for awhile.
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